Friday, June 24, 2011

WHOA! how time flies!

Well, quite a bit has happened still I last wrote.  I've really barely been online. Been really tired, sore, coughing and not hungry. I have been doing my best to eat though. I would say so even more recently. I also am still on oxygen. I have been since I left Nashy.   (Which in case you are are wondering, I'm currently in Morgantown, WV under the care of my parents and family)

So, here is what has occurred since I last wrote.

I had my " Power Port" in stalled surgically. It's a pretty awesome medical invention. With the help of a numbing cream I don't feel a pinch or a prick. They can use this this for drawing blood, giving meds or contrast for tests. No more ouchie!!

Then I had to immediately had to prep for a colonoscopy. Hmm, I've had one before. This one was the worst. enough said.

I have also had a bone scan and another CT scan. This is when they discovered my right lung has indeed collapsed! it has gotten harder to talk for long periods of time.

Then we thought we got some great news. My Dr thought we should try the drug (pill) Traciva. I took that for a week since was an indicator though some test results.  This past Tuesday, the doctor's office calls and stated that he received more test results stating that the mutant gene wasn't present that responds to that drug. *sigh* My medical anomaly status continues....

My Dr (who I truly believes has my best interest in mind) thinks that while I start chemo I should seek out another opinion for the clinical trial for ALK-1. Of course, this one I didn't show an indicator for....(*coughIamamutant*)

I believe that the closest hospital that offers this trial is University of Pittsburgh. I guess, I can put my school rival aside for my health...I guess.

Anyhow, in case you are wondering, I started chemo today.  I was apprehensive. I all went fine though.

"Father, I adore You
Lay my life before You
How I love You

Jesus, I adore You
Lay my life before You
How I love You

Spirit, I adore You
Lay my life before You
How I love You"

 Thank you so much for your love, prayers and cards!!!


Much Love!
K*