Hi!

Well...not too much is new. I've been tired, but otherwise i can't complain too much.  I have meds to take if I start feeling nauseous, so that's taken care of.  I have an appointment August 23, in Pittsburgh, to get another opinion. My doctor here requested that I go up there.

Otherwise...

• I'm tired a lot.
• Most of the time I don't know what day it is.
• I don't answer my cell. 
• I usually eventually answer texts. 
• The only time I cough is when I lean over. It is a dry cough. ( In case you were wondering)
• I've invented the terms Chemopause and Chemocold
• I've become lightly obsessed with retro tennis shoes.
• I'm super anxious to figure out when my woobie Kristin and my niecee, Noey, are visiting.
• I miss my peeps in Nashville.
• I'm missing items I left behind in TN.
• I'm looking forward to seasons one and two of Blossom arriving.

Most of all I'm thankful.  Thankful for the awesome support, love and prayers of those around the world.  Thank you to those who have sent gifts, cards, balloons, flowers and other trinkets.  They aren't necessary, but are definitely a bright spot in my day.

I must say that I totally feel God working in my life.  Despite the low times I have, most of the time, I find my peace in Him. Trusting and giving it all to Jesus was something I did from day one. It's made a huge deal in my life.  Like I say, I do have my low times, but I'm not afraid to feel.  I own it, Yo!

Overall despite this whole cancer thing:

Much Love!

K*

I know what you are saying...

Two blogs in one day? SAY WHA??? 

So, I kicked some cancer butt today. My power port behaved. When they removed some of stitches in the hospital it released whatever was pulling, causing pain in my arm and hurt when I coughed. (I'm not coughing nearly as much anymore either...YEA!) 

Thanks everyone for your continued prayers, cards and love. I believe truly that it is healing.

Dr Mo discovered he could hear a little air in my rotten potato!!!, a.k.a. my right lung.  Praise you, Jesus!!!  I love my doc and he recommended (has many times) that we get a second opinion at UPMC (University of Pittsburgh Medical Center.) So, we will be going there for another opinion soon. This will include checking out any trials I may be possibly eligible for.

He also mentioned me in at a conference as he has only had one other patient who was young (28/m) non smoker with lung cancer. I'm an important learning experience in the medical world. Booya!

My medical peeps gave me permission to get a mani/pedi!! YEA! So, thats pending tomorrow's itinerary. 

SO, it was a pretty good day!!

Much Love!

K*

P.S. Is it wrong I spent a few minutes looking at Scooter Store  today? I mean they keep saying my insurance will pay for it on the telly. Do you know how frustrating it is when somewhere doesn't have those carts or the battery dies in the back of the store....VERY!!

agenda for the day

1. Starbucks
2. Blood work
3. Visit with Dr Mo
4. Go to infusion center.
5. Kick Cancers @ss!

Love K*

random facts

I now have a watermelon addiction

I'm  over the rash, that the medication I was for a minute, gave me.

I am now referring to my right lung as a rotten potato.

I miss tap dancing

I really miss my Ava and Misha.

I am at my ideal weight. oh yeah!

I love grape Kool Aide

I love balloons.

My attention span for my computer has become very short!

Much Love!

K*

YAWN!...

Hey all!

Sorry I haven't posted in awhile. 

A week ago Friday, they put me in the hospital for fluids and observation. It was only overnight but still.  I went home Saturday. Sunday,  I got sick quite a few times....chemo's revenge. Most of this week I've been very tired but eating a little bit more. I've also been coughing less but talking is still kinda difficult.

Thursday is my next chemo treatment. God be with me!

WHOA! how time flies!

Well, quite a bit has happened still I last wrote.  I've really barely been online. Been really tired, sore, coughing and not hungry. I have been doing my best to eat though. I would say so even more recently. I also am still on oxygen. I have been since I left Nashy.   (Which in case you are are wondering, I'm currently in Morgantown, WV under the care of my parents and family)

So, here is what has occurred since I last wrote.

I had my " Power Port" in stalled surgically. It's a pretty awesome medical invention. With the help of a numbing cream I don't feel a pinch or a prick. They can use this this for drawing blood, giving meds or contrast for tests. No more ouchie!!

Then I had to immediately had to prep for a colonoscopy. Hmm, I've had one before. This one was the worst. enough said.

I have also had a bone scan and another CT scan. This is when they discovered my right lung has indeed collapsed! it has gotten harder to talk for long periods of time.

Then we thought we got some great news. My Dr thought we should try the drug (pill) Traciva. I took that for a week since was an indicator though some test results.  This past Tuesday, the doctor's office calls and stated that he received more test results stating that the mutant gene wasn't present that responds to that drug. *sigh* My medical anomaly status continues....

My Dr (who I truly believes has my best interest in mind) thinks that while I start chemo I should seek out another opinion for the clinical trial for ALK-1. Of course, this one I didn't show an indicator for....(*coughIamamutant*)

I believe that the closest hospital that offers this trial is University of Pittsburgh. I guess, I can put my school rival aside for my health...I guess.

Anyhow, in case you are wondering, I started chemo today.  I was apprehensive. I all went fine though.

"Father, I adore You
Lay my life before You
How I love You

Jesus, I adore You
Lay my life before You
How I love You

Spirit, I adore You
Lay my life before You
How I love You"

 Thank you so much for your love, prayers and cards!!!

Much Love!

K*




 

Sorry for the delay in posting....

Hello Folks!

Well, I haven't posted because I haven't been on the computer much at all. I've been pretty exhausted in between all the appointments.

Last week, I believe you all missed hearing about the following:

Monday: CT Scan

Tuesday: "Girly" yearly exam and my consult with the surgeon for my port. Then the preliminary tests needed for the port surgery: EKG, Blood work, and chest X Ray. 

After about a week long break from anything, tomorrow morning I get my port inserted.  Then I start prep for my colonoscopy. That is on Thursday.  After which we consult with my Oncologist.

It looks like the next two days will be a blur.  Hopefully, an update will appear sooner than it did last time.